Huntington’s Disease Support

Founded in 1978 to promote the needs of people with Huntington’s disease and their families and to provide them with a strong single voice, the Huntington’s Disease Association became incorporated in 1983.

We are a not-for-profit, non-government organisation with a focus on providing information, education, advocacy and support for people with Huntington’s disease and their families, and we rely on donations and fundraising to augment a small grant from DHHS which covers our administration costs.

Our role is providing information, education, advocacy and support to people with Huntington’s disease, their families and carers and to the wider community.

What we do:
Quarterly newsletters.
Resource library.
Support groups.
Networking.
Fundraising.
Provision of dietary supplements.
Resource sharing & Special Needs support.
Education— conferences & seminars.
Referral to specialist services.
24-hour family phone support.
Lobbying Government to ensure the maintenance of services for HD families.