Huntington’s Disease Support
Founded in 1978 to promote the needs of people with Huntington’s disease and their families and to provide them with a strong single voice, the Huntington’s Disease Association became incorporated in 1983.
We are a not-for-profit, non-government organisation with a focus on providing information, education, advocacy and support for people with Huntington’s disease and their families, and we rely on donations and fundraising to augment a small grant from DHHS which covers our administration costs.
Our role is providing information, education, advocacy and support to people with Huntington’s disease, their families and carers and to the wider community.
What we do:
Provision of dietary supplements.
Resource sharing & Special Needs support.
Education— conferences & seminars.
Referral to specialist services.
24-hour family phone support.
Lobbying Government to ensure the maintenance of services for HD families.
Who this service is for
People with Huntington’s disease and their families.
How this service is delivered
Our Tasmanian office is in Burnie.
Call or visit us online
Contact us or see our facebook page for further information.